FORUMS

Connect with people who understand what you are going through, seek advice and surround yourself with support. We're free, anonymous, and professionally moderated 24/7.

  • 47,612Members
  • 1,358,869Posts
  • 1,400,000Visitors
Something’s not right

No Change

No Change

I log on hoping things have changed but they still haven't. I still cannot read or chat in any thread. Doesn't matter if its new, old, mine.

Yes I've reported a technical issue, no I haven't heard back

Don't think I'm being rude, but no I cannot respond to you on here. Can only read it if I'm logged out.

Like a lot of others, being on here is a struggle. A once safe place doesn't feel that way anymore.

I've been trying to keep some hope but there's not much left.

Yes I've tried to do the right thing and reached out elsewhere for help.

115 replies

81 - 90 of 115
1...8910...12

In response to: No Change

Re: No Change

Hi @Chasingsunsets

Sorry haven't been around the last few days.

A busy end to the week coming up. Just trying to get some rest today.

I hope things are going well for you.

In response to: No Change

Re: No Change

Hey @Snowie! That’s okay no need to be sorry 😊. How’s your rest day going? I’m also having one of those days. A bed day actually haven’t left it and would stay here all day if I could. Just off for a nap now 😊

In response to: No Change

Re: No Change

Hey @Chasingsunsets sorry for the delay

was indeed chuffed that I got such an old copy of the book. A lot of sellers will comment on the condition of old books, and while one in mind condition would be amazing, I also really love it when it’s well worn and shows it age. It means that it’s been well loved and it has a story and a history in itself. I also love it when they have a written message inside and even better when it’s dated.

I seen my new SW again yesterday, she came and did another home visit and she was really good. I have found that some will ask how you are as they come in but they don’t really pay attention, but she did. And I really appreciated that. She is taking this slowly which I like. I’m seeing her again tomorrow, we are planning to meet somewhere in the community…. She’s trying to get me out! Lol

as for my new pdoc…. Oh my gosh! She was amazing. Genuinely cared and wanted to know as much as she could. She asked so many questions but in a way that I felt comfortable and safe. I walked out with my old SW and she was like wow. And I agreed. Unfortunately she didn’t have any availability again until early September, which is annoying. But we are going to wait until I have my sleep study and get the results for that and then she’s having me do a heap of bloods. I just hope she is staying around!

my brother had his heat pump installed today!

yeah sleep can be so helpful eh…. But a bad trap too. I think if I had zero cares I’d sleep every afternoon. But I know it’s not good for me. So a very short nap on the couch is all I do if I really need it. Walks in nature…. Like bush? Beach? Or just outside somewhere?

how have you been the last couple of days!? Weekend plans?

In response to: No Change

Re: No Change

Had to take my mum up the street this morning @Chasingsunsets so more like a rest afternoon.

I hope you had a nice nap.

In response to: No Change

Re: No Change

Hey there @Bow ! I loved reading all you mentioned about the book condition vs being well loved I agree with all you said! I am interested did anyone write in the book you found ☺️?

Your new SW sounds so good, you’ll have to let me know where you go! I’m interested on your little adventures 😉☺️

ooooohhhh that’s awesome about the heat pump!! You did so well to get that pushed through and installed for him, good job! Wouldn’t have happened without you so awesome job!! 🤩

I have a strong side of advocacy but I am rarely heard. I see things people maybe don’t and I guess the people I could challenge hope that people don’t see the things I pickup sometimes. Lucky for them I am still essentially powerless, can’t write properly can never deliver a message properly but it does not mean I don’t see it. It’s a shame really because sometimes I think sitting with all I see and feel adds to how powerless I am at times. But cannot dwell on it, definitely got to celebrate when you are heard and when you make a difference! I am sure your brother is so happy with the water pump!! Again well done top effort always good to see positive change! 😊🤩🥳

oh that’s amazing re your p-doc. Such a win when you have found a good one. Can take your breath away right, I have felt this too. All of a sudden you have someone good and you are just star struck🤭. We appreciate the good ones right, they are like gold hey. Fingers crossed she sticks around she sounds really good!

I like walks anywhere, whereever I feel on the day really. It would be good if 🐶🐾 could talk and tell me where she’d like to go hehe but I think she likes all the places we go 😊. Beach, forest, river, etc all a lot of fun 🤩. Interesting stil the last couple of days thought I had picked up for a minute there but not yet. I hope soon better soon🤞no fun this end of the spectrum 😜. A couple of days to go then some days off. Nothing planned for my days off at this stage. 😊. What’s on for you this weekend 😊

In response to: No Change

Re: No Change

Aw @Snowie I am sure your mum appreciated it 😊. I hope in the afternoon you were able to rest. What’s on for your weekend?

In response to: No Change

Re: No Change

Hey @Chasingsunsets I’ve just got home from an overnight and all day sleep study and I am wrecked! I will reply to you once slept a bit maybe and had a shower.

In response to: No Change

Re: No Change

Of course @Bow no worries my end 😊. I may have missed your sleep study! Sorry I would have wished you well for it. I hope it went okay. Take care 🫶

In response to: No Change

Re: No Change

Hey @Chasingsunsets I’ve had a very long and hot shower to wash all the gunk out of my hair. It still feels like I’ve got things on my face though. Think I’ll be in bed early tonight.

yeah had a sleep study cause I’m always really tired. Was a phase late last year when it was much much worse, but definitely have days where I’m exhausted. I had an at home sleep study earlier in the year and then they wanted to test me for narcolepsy- which has to be done in a clinic so did a repeat overnight study and then they wanted narcolepsy study done during the day.

I have many Alice books with hand written messages in it. My new really old copy just has someone’s name penned in it. I actually got another old copy just before we went away that I need to put in my cabinet. I’ll see if it has a message written in it.

I meet my support worker at a cafe. It was a bit of a stretch for me, out of my band of comfort, but she was good and we chatted away for a while. Talked about our travel adventures- realising that we have both been to london. Have you had the opportunity to travel much?

I love that you have a side of advocacy in you! It’s so important. But so frustrating when we go to all the effort and it all goes unheard. I think a lot of people with mh issues feel that way. I know I certainly do. I think we are judge and dismissed so much and I feel like our conditions are used against us. I struggle to find adequate words to describe it sorry.

When we were in tassie and looking at going to the MP about my brothers heat pump my mum was like… you can do it cause your food at that stuff. I have contacted and then been invited to go and meet with my local MP when there was no pdoc to write scripts for my stimulant medication. And I’ve lost track of how many letters of complaint I have written cause my local mh and the hospital have been so terrible. Thing is though, sadly the majority of responses are… thanks for writing, sorry that happened, will address it. Don’t know if I’m expecting something else but yeah.

I just hope this pdoc plans to stick around.

Does your puppy recognize the ‘w’ word?! Our dog does. And she is happy with any kind of walk. I recon yours would be the same, any walk will make their day! Oh does yours like their lead/harness going on?? lol ours runs. You’d think she’d realize that it means she’s going on a walk.

I hope things shift for you real quick. I know it’s real sucky when things are stuck and feeling yuck. I do hope you can get to do something nice for yourself over the weekend and your days off. Not sure what we will do tomorrow. Hoping for some decent sleep tonight. 💗

In response to: No Change

Re: No Change

Good morning @Chasingsunsets

Had a busy weekend, glad it's over now

I hope your weekend went well

81 - 90 of 115
1...8910...12