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Flutterbug9’s space

Flutterbug9’s space

After few chats with Tyme earlier this year plus recent posts on different threads about my physical health these year I’ve decided to set up this thread.

background summary

In my early 20’s I was first diagnosed with having OA, third generation to be diagnosed with OA. Im now early 60’s and have moderate to severe OA is various joints, worst being my entire spine. Late last year I started having quite painful OA flare ups which included feeling like one section of my lower back was on fire (caused by inflammation) and struggling to use my hands. All possibly options for treatment/pain relief available to my GP were having little or no impact. Earlier this year I was referred to local pain management clinic with initial appointment with Dr MK, my pain management Dr, in approx June this year.

Since initial appointment with Dr MK I have had diagnostic test which was found to be successful in pin pointing the nerves causing pain in my lumber area and have had RFA which helped reduce some of my pain to a level that deemed the procedure successful.

during post RFA review appointment with Dr MK it was mutually agreed on to continue with referral for infusion which involved me being in pain management ward at local hospital for entire week. Infusion, if successful, to eliminate all pain (or reduce even further pain levels).

First week of December 2025

downside of the infusion can be variety of side effects. I packed (ended up over packing) variety of things for a ‘if I’m affected by all side effects’. Side effects I had a different times during the week - overwhelming need to sleep immediately, unsteady on my feet, headache, blurred vision, feeling of thick head (similar to really bad head cold head), loss of interest in / inability to concentrate on things, teary (all normal side effects). Each evening Dr MK visited me answering any questions, providing reassurance and information in easy to understand words.

discharged from hospital this morning, advised not to drive, handle cash or make important decisions etc for 48hours. Came home feeling tired and bit unsteady on my feet, normal reactions.

ive been home for approx 7hrs by now. Feeling much better within myself. Main thing, feeling almost 100% pain free (getting occasional stab of pain into lumber spinal area. Haven’t feel so good (ie pain free) whilst sitting and working around for approx 12months. It’s not a permanent fix and unknown how long I will have the benefit for. Knowing this is very low priority for me. Still can’t believe my entire spine is pain free. 😍😍

@AlwaysMyself @Bunniekins @Chasingsunsets @Blackcloud @tyme @Jynx @MissGremlin @Cuddlebear @heartathome @Captain24 @REDLINEZ750 @AuntGlow (hoping I’ve tag everyone who has supported me recently, apologies if I have missed anyone. Please feel free to tag if I’ve missed anyone)

92 replies

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In response to: Flutterbug9’s space

Re: Flutterbug9’s space

@heartathome @Chasingsunsets @AlwaysMyself

I tagged a post to moderators, post in which I used the word upsetting. Reply didn’t leave me feeling supported.

after couple days of thinking, I’ve tagged new post, on same thread, to moderators. Wording in the post has potential to trigger people, it has me

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

I'm so sorry you didn't feel supported and you've been triggered. @Flutterbug9 You're right! Words are powerful and a feeling of a lack of support can feel devastating! I upset someone yesterday by my words. Not meaning to! It looks like your post has disappeared now! 😔 Are you okay?

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

@heartathome I dont know what is happening. My post to you and 2 others this morning has vanished. Nothing awaiting in my profile and no email

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

Hey @Flutterbug9, what’s on for your Tuesday? I did see you posted, so like @heartathome I hope you are ok and look forward to chatting when you are ready 🙏

@heartathome@AlwaysMyself

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I wouldn't know where to start @Flutterbug9 Have you emailed anyone at SANE? I can't find anywhere to do it, only technical support. I know you tagged the moderators in your last post to me, and I think you said that you have spoken to them and weren't happy with their response. I wonder what's going on! An explanation would be good, hey. I haven't seen you say anything wrong yet. Hopefully my post won't disappear! 💛

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

Hey @Flutterbug9 I'm looking into that for you and have sent you an email

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

@heartathome @Chasingsunsets @AlwaysMyself

I sent email to sane. Rubee has looked into it for me, emailed me with info about what happened plus some extra info including link to feedback section of sane.

thanks @Ru-bee

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

You're welcome @Flutterbug9 should be all sorted now 🙂

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I'm glad it's all sorted now @Flutterbug9 I could imagine that was very stressful and triggering! I have rejection and abandonment issues so I would have been really upset. Good on you for being proactive and emailing SANE. Go Ru-Be! 💛

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I have similar issues @heartathome

currently dealing with tears when trying to go to sleep and not wanting to go to sleep due to flashbacks of having the ‘H’ word said and/or yelled at me by a parent when in my teens

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