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Flutterbug9’s space

Flutterbug9’s space

After few chats with Tyme earlier this year plus recent posts on different threads about my physical health these year I’ve decided to set up this thread.

background summary

In my early 20’s I was first diagnosed with having OA, third generation to be diagnosed with OA. Im now early 60’s and have moderate to severe OA is various joints, worst being my entire spine. Late last year I started having quite painful OA flare ups which included feeling like one section of my lower back was on fire (caused by inflammation) and struggling to use my hands. All possibly options for treatment/pain relief available to my GP were having little or no impact. Earlier this year I was referred to local pain management clinic with initial appointment with Dr MK, my pain management Dr, in approx June this year.

Since initial appointment with Dr MK I have had diagnostic test which was found to be successful in pin pointing the nerves causing pain in my lumber area and have had RFA which helped reduce some of my pain to a level that deemed the procedure successful.

during post RFA review appointment with Dr MK it was mutually agreed on to continue with referral for infusion which involved me being in pain management ward at local hospital for entire week. Infusion, if successful, to eliminate all pain (or reduce even further pain levels).

First week of December 2025

downside of the infusion can be variety of side effects. I packed (ended up over packing) variety of things for a ‘if I’m affected by all side effects’. Side effects I had a different times during the week - overwhelming need to sleep immediately, unsteady on my feet, headache, blurred vision, feeling of thick head (similar to really bad head cold head), loss of interest in / inability to concentrate on things, teary (all normal side effects). Each evening Dr MK visited me answering any questions, providing reassurance and information in easy to understand words.

discharged from hospital this morning, advised not to drive, handle cash or make important decisions etc for 48hours. Came home feeling tired and bit unsteady on my feet, normal reactions.

ive been home for approx 7hrs by now. Feeling much better within myself. Main thing, feeling almost 100% pain free (getting occasional stab of pain into lumber spinal area. Haven’t feel so good (ie pain free) whilst sitting and working around for approx 12months. It’s not a permanent fix and unknown how long I will have the benefit for. Knowing this is very low priority for me. Still can’t believe my entire spine is pain free. 😍😍

@AlwaysMyself @Bunniekins @Chasingsunsets @Blackcloud @tyme @Jynx @MissGremlin @Cuddlebear @heartathome @Captain24 @REDLINEZ750 @AuntGlow (hoping I’ve tag everyone who has supported me recently, apologies if I have missed anyone. Please feel free to tag if I’ve missed anyone)

92 replies

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In response to: Flutterbug9’s space

Re: Flutterbug9’s space

It sounds like it would be such an immense sense of relief @Flutterbug9 I am happy for you to get to experience that 💜 Glad to hear it all went well.

Hope you are settling back into your space all cosy-like!

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

Thanks for sharing and the tag @Flutterbug9 That's wonderful news about the pain! I'm so happy for you! 😀 So, when do you start gymnastics? 😉

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I’m glad it worked for you @Flutterbug9. I’m sure it’s nice to be home and pain free

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

@Flutterbug9 Hello my friend. How are you feeling today?

im relieved you had a successful hospital stay for pain management. It sounds like you’ve got a really decent Dr too which makes a huge difference.

Im thrilled your almost 100% pain free Whay a difference that must be for you. I hope it lasts a long time before another infusion is needed.

Really glad your almost set up a thread. 🙂 Sending lots of love and healing to you.

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

Thank you for sharing @Flutterbug9 . OA? Oesto?

Sorry, I'm not 100% sure.

Hope you are okay.

I'll be following along and have subscribed to this thread.

I'm going away overseas until late Jan next year, so I won't respond immediately, but please keep tagging me in.

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

Thanks so much for the tag @Flutterbug9 🙏I am not far away from responding 💜 thinking of you and hope to respond during the week 🫶

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

@Flutterbug9 im a few days behind and just read this update. Thank you for tagging me, i 100% am interested and....

I am so so so glad to hear that the pain relief has been working and you were pain free for the first time in way too long!!!! 😍😍😍

I am hoping you are still feeling the relief 2 days back at home now?

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

@AlwaysMyself Physically, feeling good. Have spots during the day want to sleep.

have lots of thinking to do.

Aspects of forums making my MH feel worse

In response to: Flutterbug9’s space

Re: Flutterbug9’s space

@Flutterbug9 !! Thanks so much for your tag here and including me on your journey. I am really sorry I haven’t been able to get back to you sooner. I want you know the delay was to find sufficient time to write a thoughtful response to you, I have really valued our interactions on the forum 💜

I hear your OA has been with you for sometime, It’s really good to hear you are feeling physically better from the treatment you have received recently and have gained some relief 💛


I see you said to @AlwaysMyself that some aspects of some forums have made you feel worse and would love to know how we can support through this if you wanted 💜

Thanks for always tagging me in your awesome quotes you find also, it’s much appreciated 🙏

Take care!!

In response to: Re: Flutterbug9’s space

Re: Flutterbug9’s space

I'm sorry to hear that your mental health is suffering on the forum @Flutterbug9 . I'm usually a happy person and can find it to be very emotionally taxing at times and can bring me down! It's something I have to be careful of! I'm wondering what you find difficult on here. Do you get enough tags? 💛

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