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Advocating for change

Being in ED where your meds are taken from you

Being in ED where your meds are taken from you

I know not to mention meds but let’s say the gold standard is suddenly taken from your routine and you are forced to go without until a psychiatrist finally replaces it. Can you imagine how that messes not just with your head but also the underlying why?

Do you know others who this has happened to?

It fits in with waiting days to be moved to a psych unit. In the meantime there is enough turmoil without the withdrawal of a necessary drug.

Speaking to Drs and they can only try to understand why and how.

I guess I will never know but I intend to advocate this issue elsewhere so that gaps in care are fixed.

9 replies

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In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

Sounds very difficult @Sequester .

Last year I was shunted around for a while waiting for a bed and lost track of meds between wards, which with sleep deprivation probably compounded things. It's hazy now. Keeping faith in the system is an effort of will sometimes.

Hope you're doing ok if that's happening for you right now.

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

I know what the "Gold Standard" is. Lots of doctors might shy away from it, owing to potential side effects

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

Hi and thanks for your question. It is the key drug for my condition. If it suddenly stops it can cause death

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

Respect to you. Been there too a year ago. I am angling for law reform because there is a gap.

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

Kudos to you for your advocacy @Sequester .

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

I thought titration was the responsible way to change meds, if possible.

@Sequester

Sorry you are going through this.

Advocacy about gaps in the system is important.

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

Titration always. Community health did this to me twice. No psychiatrist safely exited me. Thankfully they did iatrogenic harm so I have a strong case to go elsewhere because all trust is gone and never to be repaired. @Appleblossom 

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

This happened to my daughter… I was livid. Every hospital has a patient advocacy service, keep asking. If GP’s, pharmacists, psychologists all say “don’t go off these meds suddenly” then don’t take them away. Especially run of the mill antidepressants. This isn’t rocket science geeez. So am with you.

In response to: Being in ED where your meds are taken from you

Re: Being in ED where your meds are taken from you

I took the nurse's phone with their consent to frantically speak to the on call nurse. She was very understanding. I had a terrible reaction the following day to coming off medication [edited by moderator] suddenly and nothing was written in the notes about taking me off it so the psychiatrists in Bloomfield had no idea until I told them a week later. They couldn't explain why this happened.

Some good news today on other topics. Police in NSW are officially off limits at welfare checks and this will be done by Ambulance. I campaigned heavily for this to happen. Change does happen.

I'm glad you were able to advocate on behalf of your daughter. In these tense scenarios anything goes when it comes to being heard and treated responsibly.

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